Overview
Arity – Content Specialist – Arity Jobs in Remote at Arity
Position Title: Marketing and Communications Specialist
Type: Part-time (25 hours/week)
Location: Fully Remote
Compensation: $26/hour, paid holiday closure
Reports to: Executive Director
About the United MSD Foundation
Founded in 2016, United MSD Foundation is a 501(c)(3) nonprofit organization serving an international community of Multiple Sulfatase Deficiency (MSD) families, researchers, and care providers. We exist to bring awareness to MSD, fund research toward treatment, and support families through education, resources, and community.
Since inception, our mission has been to cure MSD, an ultra-rare genetic and fatal condition affecting children. To that end, we have funded a gene therapy mouse model and subsequent toxicology study, and a Natural History Study. We run a MSD Biobank and Patient Registry to provide researchers with access to patient data and samples. Currently, we are supporting first-in-human gene therapy trials with our partners at the Children’s Hospital of Philadelphia.
Position Overview
The United MSD Foundation seeks an enthusiastic, experienced, and mission-driven marketing and communications specialist to join our team as we advance ever closer to a cure for MSD. The ideal candidate will take initiative, be resourceful, and exhibit a problem-solving mindset. The successful candidate must be able to communicate effectively with a diverse range of stakeholders from patient families to funders to the scientific community. This position gives the right candidate flexibility to be a creative storyteller while changing lives and science.
Duties Include
Communication Strategy
Develop the annual communication plan to ensure United MSD Foundation’s resources, research, public awareness and advocacy efforts are promoted across appropriate platforms; implement plans and monitor results
Ensure brand consistency across all avenues of communication
Gather and convey inspiring storytelling content that engages our community and attracts donors, volunteers, and other key constituents
Assist program staff with outreach goals to reach unidentified patient families through communication strategies
Generate a quarterly report on communications metrics for Board meetings
Graphic Design
Create and/or assist with the creation of marketing materials, including flyers, public-facing slides/presentations, infographics, donor communication, merchandise, etc.
Work with external vendors to ensure quality and timely delivery
Digital and Social Media Management
Create and manage a social media and editorial calendar
Plan and create social media content, including content geared at patient families, advocates, donors, and other key audiences
Drive strategy to increase daily engagement on social media accounts
Create media campaigns to increase awareness for key initiatives and events, including the annual Zebra Run and MSD World Day
Field social media comments and questions and direct them to the appropriate staff member for response as needed
Monitor, report and present on online engagement analytics (web, email, social media, earned media)
Create social media kits (for ambassadors and volunteer fundraisers) for fundraising campaigns, like Zebra Run
Leverage key engagement metrics across platforms to optimize content, messaging and distributions
Manage organization website (), including making all content edits, creating new content as needed, and monitoring relevant fee-based services (domain/website/email hosting)
Email Communications
Create and send the monthly e-newsletter, sourcing content from staff
Build targeted lists to send special campaign messaging
Analyze data to improve email engagement
Public Relations and Media
Create and maintain a media list
Write and distribute press releases
Nurture local, regional, and national media partners, and pitch relevant stories
Monitor news stories covering the the Foundation, MSD, and relevant research
Events and Fundraising Campaigns
Create and oversee event related marketing materials such as sponsorship forms, flyers, registration pages/website, etc.
Develop and monitor marketing budgets for events and campaigns
Ensure sponsor benefits, such as logo placement on marketing materials, are being fulfilled
Work with Executive Director on fundraising direct mail campaigns to assist on the creative development
Qualifications
Bachelor’s degree in a related field, such as journalism, public relations or communications, or advanced training in marketing, communications, and graphic design
3-5 years of relevant professional experience in communications and/or marketing, preferably in a nonprofit organization
Proficiency in Microsoft Office and Google Suite
Proficiency with Canva and social media platforms, including Facebook, Instagram, and LinkedIn, and related analytics
Familiarity with CMS platforms and basic HTML (WordPress, etc.)
Knowledge of CRMs, with Bloomerang being a plus
Proven results in creating and implementing marketing and communications plans
Strong written and verbal communication skills, with the ability to edit, proofread, and ensure the accuracy of finished work products
Must possess a high level of interpersonal skills to handle sensitive and confidential situations
Must maintain a high level of poise and professionalism in all circumstances
Outstanding time management skills with an ability to be responsive to revisions and meet deadlines
Ability to take initiative, be resourceful, and exhibit a problem-solving mindset, and a desire to learn new skills
An understanding of or interest in the rare disease space and patient advocacy organizations
To Apply
Email your resume, cover letter, and 3 work samples or link to portfolio to Executive Director, Sarah Cortell Vandersypen, , with the SUBJECT LINE: “Marketing and Communications Specialist.” Applications will be reviewed on a rolling basis.
Job Type: Part-time
Pay: $26.00 per hour
Expected hours: 25 per week
Benefits:
Flexible schedule
Paid time off
Application Question(s):
Please provide a link to your work samples or portfolio.
Experience:
nonprofit communications and/or marketing: 3 years (Required)
Work Location: Remote
Title: Arity – Content Specialist – Arity
Company: Arity
Location: Remote
